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Improving Consent in Information Privacy through Autonomy-Preserving Protective Measures (APPMs) journal article

Luiza Jarovsky

European Data Protection Law Review, Volume 4 (2018), Issue 4, Page 447 - 458

In this article, I argue that due to numerous shortcomings, current online consent mechanisms do not allow data subjects to think, decide and choose according to their internal beliefs, therefore impairing essential individual freedoms – or capabilities, following Martha Nussbaum’s Capabilities Approach. I identify the main shortcomings of consent in privacy as issues of cognitive limitations, information overload, information insufficiency, lack of intervenability and lack of free choice, describing the type of imbalance present in each category. Then, based on current privacy theories and focusing on the concepts of autonomy and protection – and how they can be combined and manifested in policymaking - I propose the Methodology for Autonomy-Preserving Protection (MAPP), a methodology to evaluate (old) or design (new) measures to improve consent and reinstall the freedoms of thought, decision and choice in this context. According to the MAPP, if an entity A wants to generate positive welfare to an individual B, then: 1) the intentions or goals of A must be transparent, known to B and open to legal questioning and criticism; 2) the actions of A must be transparent, non-manipulative, known to B and open to legal questioning and criticism; and 3) the actions of A must not interfere in the decision-making capacities of B, preserving her autonomy. Lastly, applying the methodology, I present a non-exhaustive list of Autonomy-Preserving Protective Measures (APPMs), showing how they can enable the three freedoms highlighted in the present work and support more effective consent mechanisms. Keywords: Information Privacy, Consent, Data Protection, Autonomy, Paternalism


Genetic Information and Communities: journal article

A Triumph of Communitarianism over the Right to Data Protection under the GDPR?

Adam Panagiotopoulos

European Data Protection Law Review, Volume 4 (2018), Issue 4, Page 459 - 469

This article addresses the question of whether and under which conditions a communitarian approach could be embedded in the data protection regime, focusing on the concept and regulation of genetic data under the General Data Protection Regulation (GDPR). Reflecting on the collective and relational dimension of genetic data, this article challenges the communitarian doctrine, which underlies the relevant GDPR provisions, and suggests that the common good should not have ipso facto primacy over individual rights. The rights to data protection and privacy should be considered as individual rights, duties and shared ends. Keywords: Communitarianism, Genetic Data, Data Protection, Privacy, Public Interest